Conference interpreter during the IX Jornada Ambiental Torres

Posted on by

With the slogan “Money is coming from Europe, will it help to break the current passivity in the face of climate change?”, this year’s edition of the conference brought together a dozen experts with the aim of analysing how European funds could unblock climate inaction.

Representatives of the different administrations were present to explain the strategies and action plans against climate change.

The closing speech was given by the rector Joan Guàrdia, Miguel A. Torres, president of Familia Torres, and the meteorologist and professor of physics at the UB, Tomàs Molina.

 

 

On-line interpreting during the webinar on the role of genetics in rare diseases

Posted on by

Share4Rare is a European project that aims to contribute to improving the quality of life of people living with rare (minority) diseases and their families. To this end, a community has been created to bring together the entire rare disease ecosystem to ultimately create impact.

To celebrate Rare Disease Day on 28 February, Share4Rare has launched a series of activities throughout the month, and on 4 February it was a pleasure to facilitate communication between patients, families, caregivers and associations and geneticists Gemma Marfany and Lluis Montoliu, who answered many questions raised during the webinar dedicated to the role of genetics in the diagnosis of rare diseases, using clear and accessible language for everyone listening.

 

On-line interpreting during the International Congress on the Effects of COVID-19 on People with Rare Diseases

Posted on by

In order to specifically address the impact of the current pandemic on people affected by minority diseases, the HSJD in Barcelona has organised a three-day international congress in collaboration with the Juan P. Garrahan Hospital in Buenos Aires.

Thanks to the recent creation of an international registry of patients with rare diseases and COVID-19, this congress, aimed at both the scientific community and patients and families, seeks to improve current knowledge of the effects of this new disease on these patients.

The congress is also part of a very active platform of the social network of the Hospital Sant Joan de Déu, Share4Rare, which allows patients with minority diseases, their families and carers, health professionals and researchers to exchange experiences and knowledge in order to promote research in this area.