In order to specifically address the impact of the current pandemic on people affected by minority diseases, the HSJD in Barcelona has organised a three-day international congress in collaboration with the Juan P. Garrahan Hospital in Buenos Aires.
Thanks to the recent creation of an international registry of patients with rare diseases and COVID-19, this congress, aimed at both the scientific community and patients and families, seeks to improve current knowledge of the effects of this new disease on these patients.
The congress is also part of a very active platform of the social network of the Hospital Sant Joan de Déu, Share4Rare, which allows patients with minority diseases, their families and carers, health professionals and researchers to exchange experiences and knowledge in order to promote research in this area.
